I don't know how to explain it...without just saying it. So I guess just make your assumptions and then maybe either you or I will have the nerve to just say it or ask it one day.
How is it going you ask? It's sad. It's awful. It's a million things. I just don't even know the answer anymore. I guess that is why I abandoned the blog for a while. I just didn't know what to say without lying. But I am back. I recently uploaded all of my pictures to my computer and hope to just update you through photos since I can't say it in words.
I know this blog was mostly dedicated to Robert's heart journey so here is a quick update just to get you through until tomorrow...
Robert is doing well (I think). No more ambulance and jet rides to the hospital. He was hospitalized for 11 days in October, but its because he now resides in the "failure to thrive" category. That meaning he is in the under 5% of size for other infants his age. If you remember, Robert was 8 pounds and 10 ounces at birth (a big boy!). So it took a while for him to slowly inch down the size charts. Most recently (December 4th), he was 13 pounds 10 ounces (2%) and 26.5 inches (75th %). Robert was put on a feeding tube in November and is still on the pump most of the day. As for heart surgeries, we are waiting until 20 pounds so we can see what's next. Of course, we have to get to 20 pounds...which is harder than first imagined.
I will updating you with a few more details soon! AND PICTURES!
